Extra! Extra!: Association of Dialysis Advocates, volunteers committed to safe and quality dialysis treatments.

GENERAL
INFORMATION

American Association of
Kidney Patients (AAKP)
www.aakp.org

American Kidney
Fund (AKF)
www.kidneyfund.org

American Nephrology
Nurses' Association
(ANNA)
www.annanurse.org

Association for the
Advancement
of Medical
Instrumentation (AAMI)
www.aami.org

Association for Professionals
in Infection Control & Epidemiology (APIC)
www.apic.org

Centers for Disease Control
and Prevention (CDC)
www.cdc.gov

Centers for Medicare and
Medicaid Services (CMS)
www.cms.hhs.gov

Consumer's Union (CU)
www.consumersunion.org

Dialysis Facility Compare
www.medicare.gov

Dialysis & Transplant City
http://groups.msn.com/
DialysisTransplantCity

European Dialysis &
Transplant Nurses Association/European
Renal Care Association www.edtna-erca.org

Fistula First
www.fistulafirst.org

Forum of End Stage Renal
Disease Networks
www.esrdnetworks.org

HealthCare
Patient Rights
www.healthcare
patientrights.com

Home Dialysis Central
www.homedialysis.org

iKidney
www.iKidney.com

I Hate Dialysis
www.ihatedialysis.com

Joint Commission on Accreditation of Hospitals (JCAHO)
www.jointcommission.org

Kidney Disease
Outcomes Quality Initiative
(KDOQI)
http://www.kidney.org/
professionals/kdoqi/index.cfm

Kidney Options
www.kidneyoptions.com

Kidney School (TM)
www.kidneyschool.org

Life Options
www.lifeoptions.org

Medical Dictionary Online
http://www.online-medical-dictionary.org:80/

MRSA Watch
http://tahilla.typepad.com

National Association
of Nephrology Technicians/Technologists (NANT)
www.NANT.biz

National Institute of
Diabetes and
Digestive and Kidney
Disorders (NIDDK)
www.niddk.nih.gov

National Institutes
of Health (NIH)
www.nih.gov

National Kidney
Foundation (NKF)
www.kidney.org

National Minority Organ
Tissue Transplant
Education
Program (MOTTEP)
www.nationalmottep.org

Nephron Information Center
www.nephron.com

Nephro World
www.nephroworld.com

RenalWeb
www.renalweb.com

AGENCY DIRECTORY

United Network for
Organ Sharing (UNOS)
www.unos.org

US Renal Data System
(USRDS)
www.usrds.org

July 12, 2007

	"Don't be such a baby." Pamela Vesco-Smith, Arizona

June 08, 2007

	Speak Up: Know Your Rights The Joint Commission Permission Granted: Charlene D.Hill, ABC, Media Relations Manager, JCAHO (061107)

March 27, 2007

An "Outrageous But Very Revealing Bill"
This invoice, sent to a patient, was provided ADA for information and sharing with viewers. The invoice was for 3 dialysis treatments, October 3, 2006 -
October 7, 2006.

Excerpt from cover letter:
"Enclosed you will find a copy of the totally outrageous but very revealing bill Davita sent.... Imagine being asked to pay over $3,000 for each dialysis treatment. The greed here is unbelievable, yet this company is crying poor to the United States Congress...."

March 26, 2007

	An Eastern Shore Dialysis Center Illness Cluster Virginia Department of Health Situation Summary - March 26, 2007 Commonwealth of Virginia

March 23, 2007

	Racial Differences in Trends of End-Stage Renal Disease, by Primary Diagnosis --- United States, 1994 - 2004 Centers for Disease Control and Prevention (CDC), MMWR March 23, 2007/56(11); 253-256

March 16, 2007

	Kidney Disease Mortality --- Michigan, 1989 -- 2005 Centers for Disease Control and Prevention (CDC), MMWR March 16, 2007/56(10);225-227.

March 7, 2007

	AHRQ and Ad Council Encourage Patients To Ask Questions and Get More Involved with Their Health Care Agency for Healthcare Research and Quality, Press Release: March 7, 2007

February 07, 2007

	Low Health Literacy Puts Patients at Risk: The Joint Commission Sets Forth Solutions to National Problem. Permission Granted: Charlene D. Hill, ABC, Media Relations Manager, JCAHO(022207)

January 29, 2007

	ADA 's Letter to Editor re "Dialysis Treatment Poses Dangers, Officials Warn" (Baltimore Examiner, January 20, 2007) Assocation of Dialysis Advocates (ADA)

January 25, 2007

	Dialysis Deaths Prompt Warning. Jonathan Bor, Reporter, Baltimore Sun Permission Granted: Jonathan Bor, Reporter (020207)

January 20, 2007

	Dialysis Treatment Poses Dangers, Officials Warn Baltimoreexaminer.com, Danielle Ulman, Reporter Permission Granted: Danielle Ulman (022607)

September 25, 2006

	Many Kidney Specialists Feel Unprepared for End-of-Life Decisions Christian Nordqvist, Editor, Medical News Today 092506 Permission Granted: Christian Nordqvist (092606)

September 19, 2006

	Dialysis Manufacturer Sued; The Northwest Herald, September 19, 2006 Permission Granted: Rob Phillips, The Northwest Herald (092606)

June 1, 2006

	The Challenge of the Unacceptable High Mortality in ESRD: Is Folic Acid the Answer Verbeelen DL: Blood Purification 2006;23-377-378. Permission Granted: S. Karger AG, Basel (061206)

	My Dialysis Experiences Pamela Smith, Arizona

May 3, 2006

	Characteristics of Sudden Death in Hemodialysis Patients (Abstract) A.J. Bleyer, J. Hartman, P. C. Brannon, A. Reeves-Daniel, S. G. Satko and G. Russell, Wake Forest University School of Medicine, Winston Salem, North Carolina, USA Permission Granted: Kidney International (052606)

January 2006

	Quality Improvement: Do We Mean It This Time? Emily Friedman, Health Policy & Ethics Analyst Permission Granted: Emily Friedman (010606)

September 12, 2005

	One Day at A time Sandra Roberts, Georgia

July 28, 2005

	Family Awarded $7.4 Million in Dialysis Patient's Death Dialysis Reimbursement & Quality Weekly - July 28, 2005, Vol. 1, No. 15 Permission Granted: K Ahlquist, HCPro, Inc (122605)

June 27 , 2005

	1stDoNoHarm: A conundrum - what good is having access to care if the healthcare you receive kills you? Author: Patti O' Regan, LMHC, ARNP, NP-C

May 24, 2005

	Ethnic Differences in Mortality, End-Stage Complications and Quality of Care Among Diabetic Patients Loes C. Lanting, MSC, Inez M.A. Joung, PHD, JOHAN . Mackenbach, PHD, MD, Steven W. J. Lamberts, PHD, MD, Aart H. Bootsma, PHD,MC Copyright © 2005 American Diabetes Association Diabetes Care, Vol. 28, 2005; 2280-2288. Reprinted with permission from The American Diabetes Association (110705)

November 26, 2003

	Patient Focused Care Richard S. Irwin, MD, FCCP, Speech - CHEST 2003 Convocation Ceremony Permission granted: R.S. Irwin, MD, FCCP, (071505)

Poster

	Things You Can Do To Prevent Medication Mistakes SPEAK UP Campaign Joint Commission on Accreditation of Healthcare Organizations (JCAHO)

Poster

	Speak Up!!! SPEAK UP Campaign Joint Commission on Accreditation of Healthcare Organizations (JCAHO)

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